Thursday, 30 June 2011

A letter from Lucy

http://www.justgiving.com/tomhayleybailey

I am unashamedly using this blog to plug the charity for Creutzfeldt-Jakob Disease which promotes its greater understanding  and treatment and also supports families affected by this awful terminal illness.  This charity has recently been hit by the Government cuts and lost its funding so is even more relient on the generosity of the public than ever.

 

A friend of mine wrote this and I am passing it on and asking you to support Tom & Hayleys run for CJD charity by sponsoring them.

“CJD killed our dear dad, a young, vibrant, healthy 62 year old, last year. If you’re feeling generous please sponsor Tom & Hayley, even if it’s just £1.
It’s the only CJD charity in the UK and is a lifeline to families like ours. The government have decided to cut 100% of their funding so now the CJD charity is run entirely on donations. We'd be grateful for every penny that you can sponsor them.”
“CJD is a fatal brain disease which affects one in a million, coming from nowhere for no apparent reason. There’s no treatment or cure. Many haven’t heard of it, or if they have, they think it’s ‘mad cow disease’ – some still make jokes about it. That was a new strain but the classic strain has been around for probably as long as us humans..”
Just Click Tom or Hayleys nose to donate
Please sponsor Tom & Hayley 
CJD Support network

The National Creutzfeldt-Jakob Disease Research& Surveillance Unit (NCJDRSU)

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